Tiny Salutations

Tiny Salutations

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Sunday, February 15, 2015

A window into the soul... of the house


Bathroom window

During window installation

Complete window installation

Windows from the inside

We have all of our windows up in our house! It's very exciting. The outside of the house is finished, except for the siding, which is going to take quite a while, and the trim, which is painted and being put up tonight.
The sealed roof- it is very hard to take a picture of from the homemade ladder

We also coated the roof in sealant. I think the roof was actually possibly not leaking anymore before the sealant. It is just so cold that the ceiling stayed wet for a long time. Jeez, winter construction. Now it is certainly not leaking, because it has been raining cats and dogs and there have been no wet spots!

We painted the inside with Kilz paint. I am aware that this is not the most friendly of paints, but mold is not good to breathe either, and I don't want to surrender the house to mold. I think the paint is better in the long run for our asthmatic baby than mold. We tried hot borax and vinegar and hot bleach (at different times) and it helped, but the mold came back. The Kilz did it's job.

Now we are ready to finish the interior. I think this part will go quickly. This is the part that people usually say takes the longest, but our interior is so simple that I really don't think it will take long at all. We have no plumbing or wiring to go in the walls. All of our systems are manually run, so the set up will be easy.

Our goal is to be done, except for maybe finishing the siding, by the end of this month! We should also have our land by the end of the month. This is really happening, and we are almost there!

A health update:

I actually have good news for once. My kidneys are operating top notch now. Yay! One less thing to worry about. Unfortunately, I have had complications with my chemotherapy though. And I have been in enough pain to need a cane to walk and unable to do a lot of things.

Dragging tree limbs around outside- sensory disorder work

The most adorable backpack ever held by the most adorable kid- sensory disorder work
Now the bad news, L has been so overwhelmed by sensory input lately. He is constantly biting himself and hurting himself. This is his last resort calming technique, so we know something is really wrong when he gets to this point. His therapists are really awesome and have been trying to help us to calm him down. His physical therapist even sent us a list of things to try at home. He is wearing a compression suit during the day, listening to a modified Mozart CD (which is an amazing help), redirecting biting to a chewie and chewy food or suckers, swinging him in a swing or hammock, wearing a heavy backpack (which is absolutely adorable), hiking uphill. It has been a bit exhausting for everyone I think. We have had a hard time pinning down what exactly the issue is. He is probably not getting good enough sleep due to apnea events. That is one reason. Also, his allergy medication may be making him irritable. We are testing that theory now, but the jury is still out. We have stopped his allergy medication and are unsure if we see a difference in his mood, but we can already see a difference in his breathing. Snoring came back, and he had another (shorter, though) blue lips episode. His asthma has also been a little worse when he is active. Whenever we go hiking or he is running around, he has needed his inhaler- BUT his inhaler works, so that's okay.

He is also getting a swallow study in addition to the sleep study. He chokes on drinks (water, soy milk, anything) with pretty much every cup he has. I thought this was just the way he is and did not recognize that this was abnormal. I thought he would eventually grow out of it and that he was just still too little to figure out how to drink properly. Apparently, kids or even babies, should not choke while drinking. Since he was so premature I have no comparison to find out what is normal. Sometimes I just think “he has had a hard road, maybe this is just normal for a micro preemie”. And sometimes, I am wrong. Anyways, if he does have a swallowing issue, this may resolve some of the apnea issues. It seems like some of the time, his apnea while sleeping is from choking on his own saliva, which is why the allergy medication helps some.