|This is how a 3 year old looks on his birthday- a blur of excitement|
|Dad reading Happy Birthday To You! on Layne's second day|
|A photo of that adorable boy who may or may not have been able to hear us reading to him on that day|
His difficulty sleeping in the car seat seems to have been related to position. His physical therapist added some pads to his car seat to force his lower back out more. And it worked! No more breathing issues in the car seat so far- fingers crossed. He is too weak to hold his head up properly in his sleep like a child his age normally should, so when his head is only slightly forward it makes saliva pool up a little more, which he then aspirates (breathes into his lungs instead of down into his stomach), which makes him stop breathing. So now that he is positioned better, I am really hoping he will continue to breathe well in the car.
Still no answers getting me walking. The kidney- and lupus-related doctors are saying it is a neurology issue and the neurology-related doctors are saying it is a kidney issue. No one can agree and although no one is trying to make things worse, nothing is really happening to make things better either. I know I have a few doctors who do honestly want me to feel better, but I'm kind of in a holding pattern right now. I personally think it is obvious that right now my kidneys are doing just fine. I don't know how my phosphorus dropped, but right now my kidneys seem fine. All of my autoimmune diseases are pretty flared up though. Still in the wheelchair...
|This has become his favorite can't-leave-the-house-without-it toy|
|Think that's a big enough bite?|
|So full of faces|
|His bookstore picks|